Sunday, April 3, 2011

Update!

As per usual so so much has happened and I didn't come back here as soon as I promised but here I am!

The basics are that I have been quite unwell for a few weeks now and ended up in the nearest major hospital (2.5hrs drive away) after I developed stroke like symptoms, very scary when you consider my faamily history (will go into that in more detail some other time)...anyhow ended up in the stroke unit (eek!). again super long story cut short, didn't have a stroke (thank god) but my body thought I did and acted like it! I was diagnosed by a great neurologist as having a conditiion known as 'conversion disorder'. you are more than welcome to google it, but basically when you suffer actuye prolonged stress and trauma, your body can manifest it subconsciously into a physical way! Wow what a scare!

I have now just finally been transferred back to local town to rehab unit to learn walking etc. most young people fully recover :)

please ask away if you would like more info but i could ramble on forever!

Tomorrow I will update how my little boy Griffin (now 2.5) with mod-severe cerebral palsy went with his first botox injections in leg muscles and hip xray, wasn't all great news, but we're trying to remain positive :)

till next time, Sandy xx

Saturday, March 5, 2011

Back for good, I hope!

Well, that was a big and very eventful break from blogging! I updated some events on the timeline over on the right. Gunna take a while for readers to catch up, but then I'm sure any blog readers have forgotten all about me and I've been pretty active on facebook so thats satisfied me (and readers a bit) :) But I thought this might be better to get a bit more of my thoughts out. Life certainly hasn't panned out how I thought it would!

Sunday, November 8, 2009

I'm back!

Had lost the desire to blog for quite some time, almost a year now! I have decided that I will blog again as there is so much going on again for me. (see side bar date thingy for my 2009 major update).

Its currently almost midnight, I have taken numerous prescription pain and sleeping drugs but insomnia and pain are still haunting me, am going back to bed in a minute to try again..

Will pop in tomorrow and give you all a run down if anyone out there is interested in reading my blog again?

Monday, January 26, 2009

Sister gone home :(

My sister was here for a week, was great! I cried most of the way home from the airport :(

Griffin doing well, mainly feeding 3rd hourly with still every 3 days or so having a 2hourly stint. I have been pretty tired but aminly due to late nights as my cousin and hubby and 4 teenage kids have also been up here for a week (they go home tomorrow).

Last weigh in almost a week ago and Griffin was 2930 so he is prob over 3kg now. He loves loves his booby milk and is not happy unless stuffed silly!

Here are a couple of photos from sisters visit.



Friday, January 16, 2009

UPDATES!

Okay apologies for being missing in action these last few weeks, promise to update more now that things are settling down a little.

Basically the biggest things happening for us at the moment is settling in with Griffin at home and also employment issues for Shannon, that and starting from in 2 days time we are pretty much going to have constant visitors until late Feb!

Griffin is doing well, gaining weight well and is now 2.7kg or just 6 pound. He feeds well. Sleeping in the other hand.,.. hmm I would say mostly good..but it started as every second day and has now become most days when he has an unsettled period when he just won't settle :( It vaires from 3 hours up to yesterdays record of 7 hours! You can imagine by this stage he is completely beside himself. We do all the usual settling things, but it just gets to a point where nothing works. Thankfully Shannon is on leave until mid Feb so the stress is halved and with him being a trained early childhood nurse, he stays pretty chilled. Just hope it gets sorted by the time he goes back to work or I won't be so chilled!

Hmm Shannon's work, very very brief version is that he has to find another job (Cairns or Townsville preferred) by mid feb or we have to move back to Weipa :( After 4.5 years there and a total of 7 years remote, we really don't want to do that.

Visitors, well first it is my sister for a week. YAY :)

OKay better go, time to cuddle the boy

Promise to update more soon!

Oh and here is two pics form a few days ago.



Monday, December 29, 2008

One content mummy

Ah I am one happy mummy at the moment!

Wednesday, December 24, 2008

Griffin is home!

Here he is ready to go in his capsule :) I'm in love!

Tuesday, December 23, 2008

A bit closer

Griffin is doing well with the feeding now, hasn't had a 'top up' after breastfeed for 3 full days now. The nurse said last night that hopefully sometime in the week we will take his tube out and see how he goes, oh I hope so!

Here are some cute pics from yesterday




Thursday, December 18, 2008

Getting there

Its getting closer! Griffin's last weight was 2070 grams and yesterday he had 2 good breastfeeds, and they just gave him a 10mls top up down his tube of breast milk. This morning he fed well again and no top up. Going back this arvo to see how we go..

I can almost see me walking through the front door with him, its only weeks away!

It might really feel like I have a baby then!

Tuesday, December 16, 2008

I'm here!

Just crazy busy between back and forth to the hospital multiple times a day. Griffin is going great, last weigh was 1950grams and due to weighed tomorrow so will be prob over the magic 2kg mark. He is getting there with the breast feeding. He is 4 weeks old today :)

Here is a photo from few days ago, he's certainly chubbing up!

Promise to be back more soon!

Sunday, November 23, 2008

PHOTO's

OKay here are some photo's.

Our first cuddle, Laci's first touch and a couple of Griffin at a couple of days old.




Saturday, November 22, 2008

The arrival of Griffin Timothy David Robertson

Okay so here is how the events unfolded to the arrival of my son and last baby Griffin at 30 weeks 1 day on the 18th November 2008.

We were due to have the much awaited scan at 3pm, time was dragging on, thankfully we were called at about 2.30pm. Shannon and I and mother in law were all there and very nervous. My ob started scanning and straight away you could see that the fluid was less again than it had been the week before. She then did the measurements of baby, he had grown but not as much as we had hoped, the most noticeable difference was his abdomen measurement. This hadn't changed at all and was sitting at only about 25th centile. This is one of the first things that change with growth restriction and the same thing had happened with Laci. She estimated his weight at was 1450grams, obviously hoping it was a little more.

The blood flow to baby was still good so that was a good thing, but this is not something we wanted to wait to see change.

Basically the ob said, 'it looks to me that your having a baby today'. of course shannon and I got all teary. She then talked to us more in detail about her findings, coupled with my ever increasing bp that was not proving easy to control. She said she wanted to go speak to the consultant paediatrician to discuss it and come back but for us to think about what we wanted to do. Whilst she was gone, we had a very diffciult time working out what to do, we felt that it shoudn't be our decision and we could see all the reasons for delivery but scared that delivery may not be the right decision..

The ob came back and basically said upon further discussion with the consultant paed it was decided that yes definately we shoud deliver. We should pull out now. My steroids for bub's lungs were current and it would only be a matter of days till we had to anyhow, lets not wait till things turned bad.

So with that I headed back to the ward. They wanted to get an IV in and take bloods to check everything. Well here began the difficulties!

I was very puffy and swollen in my feet, hands and face basically holding onto fluid everywhere. I had also been nil by mouth for 4 hours by this stage. The dr had 4 attempts at getting an iv in, but everytime he got it in my vein would collapse. They called the anaethetist and she had similar trouble but did get it in on her 2nd attempt. PHEW big relief.

Then it was the mad rush to get me showered and ready for theatre.

Arrived at theatre, scared would be he best word. Anaethetist decided she wanted a second iv just in case due to difficult veins. Thankfully she got that one in first go.

I had pre arranged for shannon to be with me for the epidural /spinal placement. A good things in hindsite as what was to come was not fun.

Serious difficulties in getting the epi in. The whole process lasted 45 minutes, was super traumatic and very painful. She would inject the local, pierce my back but for some reason just couldn't get it in, she said my epidural space was very deep and at the maximum (6cms) of the needle. At one stage she hit a nerve and I had a very painful electric shock feeling all down one leg, I was screaming and crying :( She later said that she had 6 attempts!

She finally got the epi in and it was decided to start. They did the ice test and I passed. My ob started cutting. About 3 minutes in I started feeling a sharp pain on the outer edge of her cutting, everyone was asking me a million questions about it trying to decide if it was just discomfort or pain, then all of a sudden there was pain! I'm talking pain! Deep sharp pain! I cried out and that was when my ob, said she was terribly sorry but I was going to have to go 'under'. I started crying, begging that shannon cold stay to watch his son being born but they said no.

I remember saying over and over to shannon that I was so sorry. He was crying too but telling me it was okay and and he loved me. He kissed me and left, they then put the mask over my face to breath in that lovely stuff as I was sobbing. I remember them pulling my neck back and that was it.

I woke in recovery 2 hours later in lots of pain. I remember asking if Griffin was ok, if he cried etc, did they know if he had been intubated. They said he did make some noise and that no he wasn't intubated that they knew of.

The pain was pretty intense, they had hooked up my pca button to the epidural and I was pushing it with no relief. They ended up giving me about 3 lots of bolus pain relief down my iv to settle my pain.

After about 30 mins they asked if I wanted Shannon to come down. I said yes only if Griffin ok. Shannon arrived shortly after. My first memory is that of Shannon walking in with the biggest smile on his face. It was at that moment I realised what had really happened! I had had a baby! He was just so proud and tears in his eyes. He had a couple of photo's. He said that Griffin weighed 1540grams and had lasted 45 minutes breathing on his own CPAP on.

I really wanted to be able to see Griffin but the staff said that the bed wouldn't fit in there :( This was pretty hard to deal with.

When they got me back to my room they said if after 4 hours I was able to get in a wheelchair that they could take me to the nursery. I don't think the midwives realised at that stage how major my surgery had been or how much pain I had been in as this was certainly not going to be possible.

Shannon told me that the ob had said that my surgery had been very complicated and that my uterus had ruptured, she assured Shannon that no permanent damage to other organs had occurred and she would talk to us more about it in the morning.

The time of Griffins birth was recorded at 6.54pm. I was back in the ward about 10.30pm.

Shannon left at about 11pm and headed to the nursery, he stayed there for a while, he texted me updates like Griffin's first wee :) Then Shannon headed home and got a few hours sleep.

My pain continued to increase over the next few hours, they had hooked me up the epidural for pain relief which in hindsite was pretty pointless considering I needed the general because the epi didn't work properly. So by 1am the midwife called aneathetist and organised a morphine pump to go through my iv. By 2am I was getting pain relief. I didn't sleep at all but pain was manageable.

So..

Next morning, ob comes in and talks about what happened once they got me under..

Basically as she cut to do the lower segment caesar my old classical scar (vertical cut) ruptured. Basically me uterus tore open in an upside down T cut. She said my uterus was so thin that it would no way have lasted to 36 weeks without rupturing on its own! So I feel blessed, that would have been catastrophic, don't even want to think about it!

So that was a big complication and took quite some time to repair. She said also as we expected that my adhesions and scar tissue were terrible, my bladder and bowel very much affected. She said it was a very challenging surgery and I was very lucky to have avoided any kind of bowel or bladder injury during it all.

So due to extenisve surgery she placed a drain.

So that's the events that unfolded for my son's Griffin's birth. I did confirm with my ob that she remembered to do my tubes, she confirmed, absolutely! So there closes the chapter of my life involving trying to conceive and pregnancy. Now to enjoy being a mum!

My recovery has been slow and painful, but more about that and my gorgeous son soon!

How it all happened

The birth of our son Griffin that is.. Griffin WAS born on Tuesday 18th November. I really do want to write down how it all eventuated, but in all honesty have been putting it off a little.. It didn't all quite go as planned, don't get me wrong, he is here safely and I am in one piece, but it was all very traumatic..

I'm building up to it I promise. Should have the birth story entry complete within 24 hours, will probably be good for me..

Stay tuned

Tuesday, November 18, 2008

Will today be the day?

Another days dawns, wonder what this one will bring?

Just about to be hooked up to the CTG, but bub has been having a good wiggle overnght and this morning so that is reassuring.

Had a crappy sleep, but wasn't really expecting any different :)

Told Shannon and mother in law not to rush in this morning as it may pan out to be along day.

Laci is back to her usual healthy self thank goodness after her weekend temperature and is in daycare today.

Hoping the day doesn't drag too much till the scan.

Not sure how I feel about either scenerio at the moment, if I am not to be having him today, the day to day wait will continue with still a very very good chance it will be in the next week anyhow. I am exhausted and the medications are really wiping me out.. But whatever is to be will be..it is out of my hands.

Monday, November 17, 2008

30 weeks today!

So I actually made it to 30 weeks! Only just lol

But what a day! Has been a rough day emotionally for me up and down and really starting to be not very tolerant of nursing staff etc..

Anyhow, had a crap sleep and woke with the intention of speaking to ob today about requesting to change my ultrasound from tuesday to today. Mainly that this waiting is really starting to do my head in. Also for the past 4-5 days bubs movements have really changed. Much less frequent and not as strong :( I have mentioned this to my ob over the past few days.

So we had a good chat this morning and she said that she really wanted to hold off on the scan till tomorrow afternoon as planned.. They would continue the twice daily ctgs and if anything changed she would be in. She said she is not sure why the movement seems reduced but perhaps because I am on so much medication etc.. I am also worried that it is because the fluid has dropped off even more (it is already only on 2.5th centile)..

Anyhow, so I was annoyed as you can imagaine, but what can I do?

She also told me to not have lunch tomorrow :o so we are prepared to c/s after scan if it is not what we hope for :(

So then Mother in law arrived with Shannon,(she has flown up to help out with Laci etc). Shannon has taken mon-wed off at this stage till we know.

They hook me up to the ctg...long story short, bub not being very reactive at all, heartrate not variable and hardly moving :( We try me moving, sweet things etc. No change. They tell me they are ringing ob. Then they tell me she will be in at 1pm (it is now 11.30) but that she wants to keep the ctg on..

Another 30 mins pass and bub does get active and shows some variability so they take the ctg off. We get to 2pm and no ob, so I ask when is she coming and the midwife says, oh we rang her back and told her it improved so she's not coming! So for over 2 hours, DH, MIL and I were on tenterhooks wondering.. Anyhow you get the picture, I was peeved!

Hmm and me, still constant headache, BP ok, not great but ok. SUPER dry mouth, saliva gone AWOL with the high doses of bp meds I am on now..

JUst feeling over it!

Repeating CTG tonight after 8pm.

Bring on tomorrow!

Ob said scan will be about 3pm QLD time.

Sunday, November 16, 2008

Result is in!

Urine result is in..

ITS GOOD!!!

Obviously haven't spoken to my ob and won't be until monday morning, but based on the what she said yesterday as our plan, (barring off course anthing changing drastically with my BP and bub's CTG's), we will now be waiting for the growth scan on Tuesday arvo to make the decision.

Bloods were also good..

Saturday, November 15, 2008

It'e nearing the end

Just saw my obstetrician, hmm

We have moved forward the 24 hour urine, starting now after this mornings dip showed 1+ protein again. My ob will review result monday morning and if has risen above a certain number that's it, eviction at exactly 30 weeks! (prefer not to discuss numbers). Oh and we don't think it will take much for it to have risen over that number based on my last result.

Also doing more blood tests today.

Medication increased for bp again today, as continues to rise :(

I am also looking pretty attractive with the puffiness now!

So the basics..

If urine and/or bloods not good, we will know monday morning that he is coming out on monday evening.


If urine and bloods hanging in there and bp hanging in there will wait till scan on tuesday arvo and decide then.

Feeling ok.. I think

Friday, November 14, 2008

Another day in hospital down

Plodding along! Another day dawns. Ob been in to see me nice and early again today. CTG on baby done for the day and all okay there. He has been a bit more active the last 18 hours or so which is reassuring as he was pretty quiet for coupld of days. My blood pressure is not great but not bad. So no further changes in medication at this stage.

So basically it's a wait and see game at the moment.

I did sign my caesarean section and tubal ligatation forms this morning though.. eeek!

So it's looking like will make it to Tuesday arvo's scan. Will complete another 24hr urine (protein check) on Tuesday morning so we have all the information then.. Shannon has this feeling it will be all over after scan (this has what has happened with both Piper and Laci) and Griffin will be whipped out wed/thurs. I'm not thinking about it yet. Just getting through each day.

Shannon's arvo off yesterday seemed to help both of us :) He hung out here for about 3 hours which was nice to have some husband/wife time together :) He said he is feeling a little brighter this morning.

So today I am planning another quiet day of rest, not much else to do.

Thursday, November 13, 2008

A good update

My blood pressure has decreased overnight, its still not perfect but not in the scary range at the moment and my headache is no longer migraine material, just a normal headache :)

ob came in this morning and is pleased and will continue to watch me closely, no medication increase again yet. I will continue on regular blood pressure checks obviously and also daily ctg's to keep eye on bub. Currently attached for 20-30 mins as we speak.

Ob is feeling somewhat confident that will prob make it to monday to the 30's! But obviously can't say for certain as things can change very quickly. My blood tests from yesterday were ok. So on Tuesday arvo I will have another scan, this one will again look at fluid and dopplers but also bub's growth. This will give us more of a complete picture as to what is happening and we will make decisions then I guess.

Shannon exhausted and stressed :( He is considering taking the afternoon off, I encouraged him! Laci in daycare, so he is prob going to come in here for a while to chill (we don't get much time together and certainly not without busy Laci) then hopefully he will go home for a few hours rest.

Oh and my pelvis is loving this rest! Pain so much less! Back to just pain on movement instead of constant, so that is a huge improvement! Certainly makes me feel better about things when not in constant pain!

Ok now for no excitement between now and tuesday please :)